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🌟 Empowerment in Unexpected Places 🌟 This hospitalization was remarkably different and uplifting. Imagine my surprise and joy when many from my medical teams actually remembered me from my previous visits! Last time, I was diligently working on a speech for Word Patient Day with International Pa

For those with chronic illnesses, the word and concept of "pacing oneself" comes up frequently. It's something I struggle with on a regular basis. Often I feel there is a great chasm separating all I wish to accomplish in relation to all I actually accomplish. Over the years, I have learned that

During a recent Amazon Search, I cam across a great discovery..... More main stream Adaptive Clothing lines. With a number of pieces created for people receiving chemotherapy or infusion therapies easy to put on/remove clothing pieces. The later can be used by the individual/s with limited motor ski

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As so many who have come before, have already established, the inclusion of the Rare Patient Advocates and their voices are vital to the future of the Rare Disease Community as on the whole. For it’s these organizations that are often the thread that weaves together the medical communities, researc

I am being asked more and more frequently what camera & lighting equipment I use in my videography and digital platforms in addition to questions pertaining to my editing and recording software. To create great digital content we must need to take into account the whole production at a high le

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